The impact of stroke support groups on stroke patients and their caregivers

Abstract

Background: Stroke survivors often face multifaceted challenges encompassing physical, psychological and social aspects of health during their recovery journey.

Aim: To explore the impact of stroke support groups on stroke patients and their caregivers in Kenya.

Setting: The study was conducted in eight Kenyan county referral facilities.

Methods: The study applied a qualitative interpretive paradigm and collected data from semi-structured face-to-face interviews with eight stroke survivors and their caregivers. Thematic content analysis was employed to extract and analyse data.

Results: The analysis of data revealed four key themes: (1) mental functioning, (2) environmental impact, (3) personal impact and (4) social participation. These themes were organised and related to the World Health Organization’s (WHO’s) International Classification of Functioning, Disability, and Health (ICF).

Conclusion: Peer stroke support groups significantly enhanced the ICF component of mental functioning, environmental and personal, through emotional support, social connection, coping, learning, mobility, communication and domestic life of stroke survivors and caregivers. Participation promoted affirmation and acceptance, and reduced loneliness, which led to increased involvement in a range of activities. Moreover, stroke support groups played a vital role in empowerment, education and advocating for systemic change.

Contribution: This study provides new information that improves understanding of the positive impact of stroke support groups in Kenya. It highlights the importance of integrating peer support into post-stroke rehabilitation programmes.